@MarylandQuitter
I will be the first to say I do not consider myself to be a smart person but I have experienced things that involve the NIH and the FDA. My husband was diagnosed with a rare form of skin cancer. We were given 2 years at the most. Started traditional chemo to slow disease progression. All that time I was searching for something. I found a clinical trial through the NIH, we went to to our oncologist, he informed us the chemo was not helping. Then he said there might be a trial for us. I said I know and pulled out the information I had printed out. He said yes, that is the one. I was already ahead of the doctor. Yes we do have to advocate, be informed and make decisions about our care.
We lived in Texas, the trial was in Arizona. I contacted them and sent all of my husband's records.
We were invited to enter the trial. They paid for airfare, hotel, rental car and meals. They were wonderul to us. Most of all the drug was oral in nature and did not make him sick, they paid for all the ct scans. pet scans, blood work, surgeries my husband had.
From this trial we went from a year or so to getting five years and one month. My husband was able to continue with work that he loved. My husband got to see our son graduate from high school and enter college.
I (and I am sure my husband) was proud that I found out a couple of months after my husband died this drug was approved for brain cancer in children which gave them a quality extended life with their families. So, yes I do support the NIH/CDC and that people research,learn all they can and be proactive in their/families healthcare. So I say research, read, be proactive and most of all we all know the danger of smoking. You can quit, it will take effort but there are people that will help you!!