jillar
Quit Date: May 29, 2016
Posted May 28
As many of you know I was officially diagnosed with severe emphysema and COPD after I had respiratory failure in January of 2020. Most of you also know that for years I was struggling with breathing issues that I was told was asthma. In the two years leading up to my respiratory failure I went from 110 pounds on a 5'5" frame to just 79 when I was admitted into the ICU. My prognosis at that time was pretty grim, get better or go home on hospice. But either way I was also going home on oxygen. Since then I have put most of the weight back on and continue to feel myself get stronger each day. So then what's the point of this post you may be asking and its this....
I found a great group for people with COPD on Facebook which is ironic because I never used Facebook pre pandemic but the group is awesome. So many people that can relate and answer the many questions those of us newly diagnosed have. Much like our community does.
Here's the sad part, I read post after post from members of that group still smoking. Some are on oxygen and still smoke! I of course pass our site on to them and I hope they find their way here. Its just really sad to see. There's even a few who's Drs have refused certain procedures because they're smoking. Life saving procedures too I might add.
COPD is a progressive disease with no known cure. It can be slowed with proper medications and quitting smoking. Sadly we can have it for years and not even know it until we get an exacerbation. Mine was thought to be asthma.
My day consists of trying to keep my 50' oxygen tubing out of the walkways and from getting caught in the doors. I'm embarrassed to go anywhere because people will be whispering things like "that's what happens when you smoke" etc. My poor dog and cat also have to dodge it while I'm walking down the hall to feed them. Its no way to live.
I'm not looking for any sympathy I just want to put a brutal face to this terrible addiction in the hopes it helps someone quit or keep their quit.....
Link to original post: https://www.quittrain.com/topic/15648-copd-and-smoking/